【national_organization_for_rare_disorders】什么意思_英语national_organization_for_rare_disorders的翻译_音标_读音_用法_例句_在线翻译

National Organization for Rare Disorders

美国罕见疾病组织

美国罕见疾病组织（National Organization for Rare Disorders）的调查显示，目前被归类为罕见疾病的病例约有6000种，而已有超过3000万美国人患上了其中一种疾病。

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病组织

还有一个客户群，国家罕见病组织（National Organization for Rare Disorders,NORD）的数量越来越多，现在代表2000万患者及其家庭，正在采取行动以引起公共注意，并有助于将患者和进行有关...

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abstract: The National Organization for Rare Disorders (NORD) is an American non-profit organization aiming to provide support individuals with rare diseases by advocating and funding research, education, and networking among service providers. It was founded in 1983 by Abbey Meyers, along with individuals with rare diseases leaders of rare disease support groups, and it is a 501(c)3 tax exempt organization.

以上来源于: WordNet

The National Organization for rare Disorders was established in 1983 by individuals and families with rare diseases.

国家罕见病组织由个人和有罕见病患者的家庭一同在1983年建立[11][12]。

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更多双语例句

His private insurance pays for Soliris, with the National Organization for Rare Disorders, which gets funding from Alexion, picking up his copayments.

FORBES: How A $440,000 Drug Is Turning Alexion Into Biotech's New Innovation Powerhouse
The National Organization for Rare Disorders, a nonprofit that had run the program for the company in the U.S., sent letters to all 13, 000 participants notifying them of the chance to speak at the hearing.

FORBES: Cover Story

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